TOPIC GUIDE: Organ Donation
"We should introduce a system of presumed consent for organ donation"
PUBLISHED: 01 Jan 2009
AUTHOR: Tony Gilland and Dave Bowden
INTRODUCTION
When Christiaan Barnard transplanted the first human heart in South Africa on 3 December 1967, it was hailed as a triumph for modern medicine. According to the British Heart Foundation [Ref: British Heart Foundation], more than 5,328 heart transplants have been conducted in the UK, and patients can go on to live very active lives, some even running marathons [Ref: Heart Transplants]. The latest NHS figures list 3,087 people [Ref: UK Transplant] as having their lives saved or improved by an organ transplant in 2006/07, benefiting from kidney, pancreas, lung and liver transplants as well as hearts. However, despite being a pioneer of transplantation, the UK has one of the worst records for organ donation in Western Europe. More than 1,000 patients die annually due to a lack of available organs at a time when the number of patients registered for a transplant is rising, up by 8 per cent on the previous year to 7,235. In response to this situation, in 2006 the government established the UK-wide Organ Donation Taskforce [Ref: Department of Health] to identify barriers to organ donation and procurement. In July 2007 the Chief Medical Officer, Sir Liam Donaldson, argued for changing the legal framework governing organ donation and abandoning the UK’s ‘opt-in’ system in favour of a system of ‘presumed consent’, where individuals would have to actively ‘opt-out’ if they do not wish to be considered donors upon death [Ref: Department of Health]. In an article published in the Sunday Telegraph in January [Ref: Telegraph], Gordon Brown indicated his sympathy for this proposal and kicked-off a nationwide debate.
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Organ Donation DEBATE IN CONTEXT
This section provides a summary of the key issues in the debate, set in the context of recent discussions and the competing positions that have been adopted.
Are we just too lazy to register?
Supporters of presumed consent point to the far higher donation rates achieved in countries that operate some form of opt-out system. For example, Spain, which operates a ‘soft’ opt-out system [Ref: UK Transplant] where the views of relatives are still sought, has 35.5 organ donors for every million people of its population – three times the UK rate of 12.9 per million. One reason for this differential is that in the UK only 25 per cent of the population have signed up to the donor register, despite surveys showing up to 90 per cent support donation [Ref: UK Transplant]. The broadcaster Vanessa Feltz argues all Gordon Brown wants ‘is to make it easier for those of us too ditzy, dopey or with our heads buried too deeply in the sand to make a difference in death’ [Ref: Express]. The British Medical Association points out that presuming consent rather than presuming objection is more likely to achieve the aim of respecting the wishes of the deceased person, and would relieve relatives of the burden of making the decision in the absence of any indication of the deceased person’s wishes [Ref: British Medical Association].
What about personal autonomy and respect for individual beliefs?
Critics of the proposal argue it turns volunteers into conscripts and demonstrates disdain for ordinary people. Katherine Murphy of the Patients Association charity [Ref: Patients Association] told the Daily Telegraph: ‘We don’t think a private decision, which is a matter of individual conscience, should be taken by the state’ [Ref: Telegraph]. Mick Hume, the Times columnist, has written about the importance of personal autonomy, arguing that whilst ‘the dead body is no longer a person’ neither ‘should it automatically be assumed to be a national asset’ [Ref: spiked]. Hume further notes the proposal has the potential to undermine trust in the medical profession whereas a high profile campaign to persuade patients this is the humane thing to do could win widespread public support. Polly Toynbee, the Guardian columnist, counters that opposition is based on superstition and scaremongering led by ‘a few vociferous people’s misguided and primitive instincts about the sanctity and integrity of corpses’ [Ref: Guardian].
Will planned safeguards address concerns and objections?
Gordon Brown stated ‘in cases where the potential donor is not on the register’ it would be ‘only right and proper’ to ‘leave the final decision with the family’ [Ref: Telegraph]. Liam Donaldson emphasised that the right to opt-out must be ‘inalienable’ [Ref: Guardian]. But does this address the point that an opt-out system is not voluntary and that the onus should be on the medical profession and the NHS to win public support rather than rely on conscription? Dr Kevin Gunning, an intensive care consultant at Addenbrooke’s Hospital, is concerned about conflicts of interest when tending someone considered a potential donor [Ref: Telegraph]. Donaldson insists there will be rigorous clinical protocols, including the brain stem death test [Ref: UCL Institute of Child Health], to determine when someone can be considered for donation.
Is presumed consent the best way to achieve higher donation rates?
In November 2008 the Organ Donation Taskforce unanimously rejected [Ref: Guardian] presumed consent, on the grounds there was no clear link to improving donation rates. Instead, they argued in an earlier report, the government should focus on an improved centralised system of organ procurement, involving a doubling of the number of transplant coordinators within the NHS to 200. Spanish medica argue this was the key to their success [Ref: BBC News]. Yet Gordon Brown has not ruled out introducing presumed consent [Ref: BBC News] if the latest publicity drive fails. If this is the true basis for Spain’s success, is the UK government in danger of missing the point and alienating doctors from the public? Or is a system of presumed consent what the public really want anyway? Meanwhile, pioneering stem cell research [Ref: Guardian] offers a potential technological solution– but that is no less problematic [Ref: Guardian].
ESSENTIAL READING
It is crucial for debaters to have read the articles in this section, which provide essential information and arguments for and against the debate motion. Students will be expected to have additional evidence and examples derived from independent research, but they can expect to be criticised if they lack a basic familiarity with the issues raised in the essential reading.
New laws could make everyone an organ donor
Linda Geddes New Scientist 14 September 2008
UK Transplant March 2008
Organ donations help us make a difference
Gordon Brown Sunday Telegraph 13 January 2008
Organ transplants: The waiting game
Liam Donaldson Department of Health 17 July 2007
FOR
‘People are dying. It’s human to help’ says health chief
Gaby Hinsliff Observer 16 November 2008
Living people matter. When you’re dead, you’re dead
Polly Toynbee The Guardian 15 January 2008
One transplant kidney can save my son’s life
Denis Campbell and Jo Revill The Observer 13 January 2008
Organ donation - presumed consent for organ donation
BMA January 2008
AGAINST
Rafael Matesanz and John W Fabre Guardian 17 November 2008
Dominic Lawson The Independent 18 January 2008
Would you donate your body to Gordon Brown?
Mick Hume spiked 16 January 2008
Gordon Brown and forced organ donations
Philip Johnston Daily Telegraph 14 January 2008
IN DEPTH
Can this success be transplanted?
Johnjoe McFadden Guardian 19 November 2008
Organs for transplants: a report from the Organ Donation Taskforce
Department of Health 16 January 2008
It is immoral to require consent for cadaver organ donation
H. E. Emson Journal of Medical Ethics 2003
KEY TERMS
Definitions of key concepts that are crucial for understanding the topic. Students should be familiar with these terms and the different ways in which they are used and interpreted and should be prepared to explain their significance.
BACKGROUNDERS
Useful websites and materials that provide a good starting point for research.
Presumed consent in organ donation
The Moral Maze BBC Radio 4 16 January 2008
Parliamentary Office of Science and Technology October 2004
Organ and tissue transplantation in the NHS
Department of Health
ORGANISATIONS
Links to organisations, campaign groups and official bodies who are referenced within the Topic Guide or which will be of use in providing additional research information.
IN THE NEWS
Relevant recent news stories from a variety of sources, which ensure students have an up to date awareness of the state of the debate.
Transplant first a giant leap for surgery
Guardian 19 November 2008
Gordon Brown defies advice and threatens opt-out law to solve donor crisis
The Times 18 November 2008
Presumed consent ‘not ruled out’
BBC News 17 November 2008
Chief medical officer condemns organ donor decision
Observer 16 November 2008
Nurses support assumed organ donation policy
Daily Telegraph 29 April 2008
Organ donor opt-out scheme ‘treats body like spare parts’
The Scotsman 21 March 2008
Doctor ‘hastened death of patient for organs’
Daily Telegraph 29 February 2008
Bishop speaks out against taking organs without consent
Daily Telegraph 15 January 2008
Organ donor system overhaul call
BBC News 13 January 2008
Tories criticise Brown on organ U-turn
The Times 13 January 2008
Organ donor plan under scrutiny
BBC News 20 September 2007
Organ wait number at record high
BBC News 25 April 2007
The Sunday Times 25 March 2007
Families ‘hamper organ donation’
BBC News 12 May 2006
Press attacked for organ reports
BBC News 12 August 2005
Labour rebels defeated over consent for organ donations
The Times 29 June 2004
Minister rejects call on organ donation
The Times 16 January 2004
AUDIO/VISUAL
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